Posts

Showing posts with the label hydrocephalus

We're still here

Sorry for the lack of posts. It just seems like there aren't enough hours in the day for everything we need to do sometimes. FYI if you sent a check to Bands for Baby that hasn't been cashed yet, don't worry, it soon will be. The person maintaining the account for us has been traveling a bunch lately and hasn't had a chance to get to the one bank that the account is in, but she should be doing so soon. As for Isaiah, yesterday was his four month Birthday and he had a ball of a day (at least what Daddy saw last night) We didn't really do anything special, but he's been a happy bubbly baby lately. He's starting to 'talk' a ton more lately and he's got smiling down pat. Occasionally we now wake up to his giggling instead of crying. He went to the neurologist last week who says his brain is developing quite well and that Mom and Dad are doing a great job. His muscle tone in both his arms and legs are good, but he's favoring his right arm ...

Good News

We are negative for Hydrocephalus again! While that is good news on its own, there is better news. Since it hasn't shown up yet, there's a very good chance it won't at all, so we won't have another CT to monitor it for another month, and then 6 months after that so things are looking up. Rachel and I we're able to get out of the house tonight for a much needed 'date.' We went to go see the Thrashers play the Minnesota Wild here in Atlanta thanks to some free tickets. It was nice to get out a bit and scream and yell. Plus it was like when Rachel and I were first dating and I started introducing her to hockey taking her to the games I had in my half of our Wild Season tickets back when we lived up there. We sort of felt normal for a little bit there, and then a wave of tiredness hit us both at about 9pm and we barely made it through the rest of the game, but I can't leave a hockey game early, especially a MN Wild game! The Wild won 4-2, which was an...
Sorry no pics yet. Brian's been sick since about Thursday night and it got real bad over the weekend. We'll get them up as soon as we can. In other news Izzy's got another CT scan today to check on the hydrocephalus. Hopefully it comes back negative again. We've already had to stop feeding him since they think they may need to sedate him today since he's a bit older and more active. Hopefully the pedialyte will hold him over until 1pm otherwise Rachel's in for a long morning.

Waiting for gas

So I'm stuck at a gas station waiting for them to turn on the pumps since the corolla is nearly on E and ATL is still admist a gas shortage due to Ike. They said about a half hr about 15 minutes ago, so hopefully we can get some gas soon. As for the hydrocephalus the CT scans came back negative today, but it was still enough to stress both Rachel and I out beyond belief. We still need to watch out for it and I think we'll be going back for another CT scan in a couple weeks, but for now at least we don't have to worry about them sticking a shunt into his brain to drain the fluid. I mean c'mon can anything else go wrong? We're finally coping better with everything after the surgery and then this scare happens. In other news rachel called while I was waiting here and said Isaiah swung at some of his toys unprovoked today! We've usually had to show him first and then he'll copy, but Rachel saw him concentrating real hard and then taking a swipe at one of his...

Hydrocephalus?

Rachel was at Dr. Hudgin's this morning to get Isaiah's staples out of his head and he didn't like how big Isaiah's head was looking. It seems he may have hydrocephalus like they feared we would have to watch out for. Rachel is now sitting at Children's waiting to have another CT scan done and she'll be heading back over to the doctors office so they can look them over and determine what the course of action is if he does in fact show signs of water on the brain. I'm still sitting at work here on my lunch hour, but its a bit nerve wracking. We don't know anything for sure as of yet, but I felt like I should do an update today. Other than this little scare, everything has been going quite well with his health. The incision/scar is looking good, he's been a bit less fussy lately and he's been sleeping quite well. We actually had to wake him up for his nebulizer and feeding over night, rather than him waking up first. Before this whole hydrocep...

Going home

We are in all likelyhood going home today. His fever has gone down and he hasn't been over 100 since around 4pm yesterday. His bandages were taken off yesterday morning and we got to see his new face. He does look different, but much of that could also do with the fact he's still very swollen and he will be for the next few days. He's got something like over 50 staples (we haven't counted them exactly yet) across the top of his head. When his hair grows in the zag zig scars should be nearly invisible, it just means he can't shave his head. For the time being we figured if kids looked at him funny b/c of his scars we'd tell them he's Harry Potter's long lost brother. We can only sponge bathe him for a while now and his staples will be in until a week from tuesday. The thing we have to worry about now is hydrocephalus (water on the brain). Now that the pressure in his brain has been temporarily relieved there is the potential that his ventricles ...