Isaiah 7.17 : Updates, etc.

So it seems the daylight hours make Isaiah a little more rowdy. Apparently while Brian was off at work for a few hours wrapping things up Isaiah decided he wanted to eat nearly every hour and mess his diaper more than usual. It could be because he's only on breastmilk right now and the hospital would do a feeding or two with formula and apparently breastmilk is less calories so he gets hungrier faster. We're still working on consitently getting him to eat more than about 60cc's a sitting, but everything will come in time. Brian's off work now until Monday so hopefully we can get things into somewhat of a groove by then, but we'll see! Mom and Grandma Hanthorn gave him a bath today and he tried out his swing some too all of which we'll update the pictures with eventually here.

Daddy's got to get ready for work, we tried taking a bit of video last night, but when we uploaded it to youtube it was pitch black so we'll try again later, but in the meantime enjoy a few new pix! We've uploaded a small number of photos from his last hr in the NICU, his car ride home, and his first hours at home.

Well we made it through the first night without much in the way of huge fusses. He actually almost made it until 4am this morning after the 11pm feeding which was good for mommy and daddy's sanity. The first few feedings here he was only taking 60-75cc's compared to the 100cc's he would take from the nurses in the hospital so we were a bit worried, but we're slowly getting the hang of it and he took 90cc's this morning. Now comes the fun part of trying to schedule all of the doctors consultations with the specialists. Besides the normal pediatrician visits we've got 6 other people to see in the next 3 months. The first two biggies being the neurosurgeon and cranio facial guys that work together, and also the hand specialist that will be trying to split his thumbs from his hands at about 3months. The fun has just begun, but we're just ecstatic that he's home. Despite the lack of sleep we're just starting to experience, both Mom and I feel tons b...

Well its about 11:30. We've had him home for about 5 hrs now and slowly getting into our routine. He was hysterically hungry at 8 when we had to give him his Zantac and Flonase, but he woke up a full hour early for his next feeding at 11:00. (He was supposed to wait until midnight) And thats where we sit. Dad got the baby monitors working and Mom is finishing pumping and hopefully Izzy sleeps for his 3 hrs this time. I can totally see why people say we would get no sleep. We thought we weren't getting sleep when he was in the NICU because we were worried about him. Now we won't get sleep because we have to do everything for him. I'm looking forward to the challenges ahead, but how people do this and juggle work at the same time I just don't know right yet. Give me a week or so and I'll claim to be an expert, but for now Rachel and I are fumbling through our first night. R's Mom is here with us too tonight, so I can't write long, but if we're...

Just a quickie here, but he's finally home with us! Literally only for the last fifteen minutes or so, but we had to share and we can't jump around the house because we're trying to get him to sleep until his 8pm feeding!!! Film at 11...

So in the meantime while we await Isaiah's presence in our home I thought I would post a quick little video of his nursery for those of you who were curious. Its not completely done (or perfectly clean either for that matter) but check it out. We like it, and hopefully Isaiah will too. As for his progress today he didn't really have any desaturations since they put him on 2 different kinds of nosedrops and an antacid. They're going to run a sleep study on him tommorrow that will check his airflow in/out of his nose and possibly a hi res CT scan of his nasal passages to determine if surgery is the only option. Oh the fun of it all. Mom and Dad are doing better today. The last two days have been kind of tough going into the hospital thinking we're taking him home, but then ending up not getting to. Today we knew he was still going to be staying so it was a bit easier, but still hard. We miss our little guy and hope he can come home with us very soon! Rachel...

So Izzy is still in the NICU. He failed his second car seat test, but passed his car bed test. Why is he still there though? When he was sleeping after a big meal (80 cc's!) his SPO2 levels dropped into the high 70's which is not good at all. It wasn't showing any correlation to the heart and respiratory lines which is what our home monitor would be picking up, so he could drop to dangerously low levels of oxygen in his blood without the alarms even going off if we took him home. The docs want to check a couple things like the effect of nose drops, etc to see if his nasal passages are just inflamed. The other thing that it could be is that with all his other cranio facial problems his bones at the nasal passages may be what is constricting the airflow. If that's the case he'd need rhinoplasty to rework his nasal bones and open things up some. So yeah, yet another surgery he made need. We for sure won't be able to take him home until at least Monday now o...