Isaiah 7.17 : Updates, etc.

So we officially have a surgery date.  7am on March 24, 2017 Isaiah will be going back for the RED surgery.  Having the actual date set just makes everything sink in so much more.  Rachel and I were in a fog for much of yesterday evening.  We knew it was coming and we know of plenty of people that have gone through all of this or will be doing the same surgery within months of us, but it doesn't make it any easier.  Maybe we were in denial for awhile, or simply just chose not to think about it, either way its hard to think of much else right now. Right now we're trying to figure out what help we'll need before, during, and after the surgery as people have already started asking.  We've never gone through one of Isaiah's major surgeries with other children before and now we have two!  We've always been so steeled up that we could do this on our own before, but inside we know we really can't.  We're even just having problems trying to explain it t...

Isaiah, Christopher, and me at the Train Show last weekend. It's always bittersweet to resurrect this blog.  Usually it means Isaiah has a surgery scheduled since this is one of the easiest ways for us to share with everyone that may not be linked up with Rachel or my social media accounts.  Well here I am updating this again as we prepare for the surgery we've been simultaneously dreading and excited for, the RED surgery.  It's one of the most involved and serious surgeries Isaiah will undergo, but its also one that will have the most drastic change in his appearance and will make him look a bit more like a typical child.   For those of you new to Isaiah's story and Apert Syndrome here's a link to Isaiah's surgeon in Texas' website  .  Isaiah's next surgery is the midface advancement (LeFort III) using the RED (Rigid External Distraction) technique, or simply "the RED" as most of the families with similar syndromes call the surgery and w...