18 May 2017

Home Safe and Sound

We're home safe and sound.  I'll do a bigger update here sometime this weekend with some good before / after shots hopefully.

16 May 2017

Introducing Isaiah 4.0

Right after they took the bar off in preop holding

The rest of the trip to Dallas was pretty smooth.  Yesterday we got some good news that his ears looked like they were healing well and that he wouldn't need another set of tubes put in when they take the halo off.  We also got to meet up quick with another Apert family, the Clarks, who were here from Ohio to have their daughter Haylee's halo removed as well.  Its always great to meet other families and they were nice enough to give Isaiah another gift of legos which he had to build almost immediately of course!

This morning we checked into the hospital at 7am, by 8:15 we were in the preop holding area and got a glimspe of things to come when they took off the front bar.  All in all it was a pretty quick surgery and he was in the recovery room by 9:45.  It was there we got to see Isaiah 4.0 for the first time with no halo!  He was still pretty out of it, but was asking for his ipad soon enough.  Even though we've seen the progression over the past few weeks, its just so different without anything else on his head.  We were so worried he had messed things up when he fell, but other than some bigger holes and scrapes by the pin sites he's doing fine.  I say 4.0 because this is the 4th different facial surgery he's had and each time his looks change some, but this one is by far the most drastic. He's like a new kid!  Even his voice has changed and is a bit more nasally right now.  

Our little cherub still holding tight to the halo
 We had to wait a bit for the anesthesia to wear off and then wheeled him to get pictures, xrays, and remeasured by Dr. Chan the anthropologist.  His cheeks are still a bit swollen and will be for a week or so, but the initial measurements are all good.  The happiest surprise is that his side to side measurements came back equal which means his face is almost perfectly symmetrical now instead of the left side being slightly smaller and narrower.  We left the hospital  a bit after 1pm, grabbed a quick bite at In & Out Burger and are letting the rest of the anesthesia wear off in the hotel before we figure out what else we may do today.

So far the funniest part is he wants to keep carrying the halo around like a stuffed animal.  I guess he got kind of 'attached' to his purple crown.  Tomorrow we drive back to Atlanta and will hopefully be able to stop off for a quick visit with a couple more families on the way home.




Thank you all for your continued thoughts and prayers throughout this journey.  We all appreciate them so much and we know its been a big help.  God does some amazing things and has put some amazing people into our lives and we're thankful for that every day of our lives!




Checking himself out in the mirror for the 1st time

14 May 2017

Ready to be done...

Getting ready to leave home
I had meant to update things earlier, but we've had a little too much drama the last few days.  Isaiah fell on Thursday and Friday and knocked his halo loose a bit .  Besides the temporary pain he had a good amount of blood oozing out of the pin sites on the sides of his head and it sent us into a panic thinking we got so far along and then messed everything up.  We called the on call physician and they talked us down a bit but Rachel and I have been in a pretty stressed out state since the falls and will be until the halo comes off on Tuesday and we know everything is okay.  Everything should be pretty much set by now, but we can't help but be sick to our stomachs about the whole situation.  Isaiah's acting fine for the most part which is good, but your prayers are appreciated for calming our nerves and that all is still well with Isaiah.




In Vicksburg, Train in the background
Tonight I'm writing from our hotel room in Shreveport, LA.  We left home about 9:45EST and got here just before 6.  The trip out has been pretty uneventful so far.  We did make our normal stop at the rest stop in Vicksburg, MS overlooking the Mississippi River and this time Isaiah got a treat and got to see a train lumber its way out of a tunnel, up a small hill, and over the river.  It really made his day. I think we've got about 2 and half more hours to go to get to Dallas tomorrow in time to see Dr. Peters his Dallas ENT to determine if he'll need new ear tubes put in when they take off the RED. We're just ready to be done with this all.  We've been so scatterbrained and running on such a high level of stress since Friday on top of all the worry and anxiety we've had around this the past 7 weeks we're just wiped.  At least Isaiah has been handling it all like a champ...