Isaiah 7.17 : Updates, etc.

I didn't want to make the last post super long, but we've got a big weekend this weekend. Tonight we're heading over to Johns Creek to have dinner with the Maxwell's who we met with back in January. They've got a 21 year old daughter with Apert Syndrome. We're also going to meet Liz Saylan, a grown adult with Apert Syndrome, and Don and Cathy Sears and their daughter Teeter who run Apert.org. Tomorrow we head down to Newnan, GA to meet the Hills who have an annual get together of Apert families from around the metro area so we may even meet more families and/or see some of the friendly faces we met in Birmingham! We're excited to see familiar faces and meet new friends as well! Hopefully the little squawk-a-box can make it through all the excitement with out too big of a meltdown. Oh yeah squawk-a-box is a new nickname for Isaiah that Rachel came up with since he's been really vocal lately and 'squawking' at us quite a bit as he tries to ...

So I was on the phone with my Mom and Dad today and my Dad threw out another nickname for the little guy..."Ice" I don't know if that'll make him to grow up to be one of those white boy wanna be gangsta rappers, but its another nickname to add to the stable. I've been a bit fluey lately which worries Rachel because we don't want Isaiah sick before the surgery so I'm on super handwashing duty and not allowed to touch things that will directly go into his mouth. Unfortunately it does not completely absolve me of my late night feeding duties though, but Rachel was nice enough to let me skip one last night so I could get more sleep. Personally I think its more flu like symptoms because of the extreme lack of sleep I've had lately (moreso than usual, like 2-4 hrs a night until last night) so this holiday weekend is a good thing so I can try and catch some cat naps during the day. I'm taking zinc and vitamin C supplements to hopefully curb anything else ...