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Showing posts from 2021

Pre-Op-A-Lula

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 We made it safe and sound to Dallas.  Drove from ATL to Monroe, LA on Sunday and Monroe to Dallas on Monday.  Pretty much the whole trip on Monday was in torrential rain and we saw a number of cars skidded off the road and in the ditch, but we made it through it all.  We've settled into our home away from home at the Residence Inn near Medical city where we always stay and today was Pre-Op appointment day.  We had a string of appointments from 10:30-3 pm and Isaiah was a trooper   We started out with pre-registration so we don't have to deal with it at 6:30 tomorrow morning, then had pictures, and saw the anthropologist, Dr Chan, to register all his current measurements.  She was happy with his growth and said we're pretty lucky he's within 2-3mm of being symmetrical across his face which isn't always the case with how much revision Apert kiddos have to their faces.  We then saw the intake nurses, child life, and got some labs done.  We grabbed a quick pretzel in t

Dun Dun Dun

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 The blog is back,  and you know what that means, another surgery.  I rarely update this anymore as the day to day is pretty much the same and very busy with my work and 4 kids.  Rachel doesn't like to write here but I still like to do this from time to time to update people who've been following along with Isaiah's story we may not be facebook friends with, etc.   The whole crew squinting in the sun    First a little game of catch-up. Since the midface 4 years ago Isaiah's been doing pretty good.  He's been breathing much better overall, even had a sleep study with no apneas! We still have ups and downs, but most issues have been relatively minor and not surgical.   One of the bigger things we've been dealing with behavior issues mostly as of late.  Some of it is the autism and some of it is related to the scarring he has in his frontal lobe from his first cranio surgery at 7 weeks old.  We've been on a carousel of different meds, been through countless hou