This is a somewhat infrequent look at our journey of raising a child with Apert Syndrome. We'll be including updates on Isaiah's surgeries, and growth progression, and whatever else we feel the world should know!
Mickey Mouse's House
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By
BK
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Here's Isaiah having a blast with Mom in Mickey Mouse's Living Room!
We've got so much to be Thankful for this year! especially all of the help and well wishes we've received from all of you. We've got a healthy baby boy, with a couple of major issues, but all things that can be dealt with in time. We're so happy and lucky to have him. We're finding out fast that there are some great people down here that have offered their ears, their arms, and their wallets to us. We've got great support almost nationwide too! So as a quick little sign of thanks we've got this little video for you all to see the little guy in action.
A little tradition on the Kolis side of the family is to celebrate St. Nicholas Day on December 6th. We put out our shoes and overnight St. Nicholas stops by and fills them with candy and presents. My family the presents are usually an ornament of some kind. The little video above is Isaiah m0re interested in the video camera than his St. Nick's Day presents under the tree!
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