This is a somewhat infrequent look at our journey of raising a child with Apert Syndrome. We'll be including updates on Isaiah's surgeries, and growth progression, and whatever else we feel the world should know!
Boba Fette
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BK
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Yes that is Rachel under there, but apparently she's a peaceful bounty hunter lurking in the shop after the Star Tours ride at Hollywood Studios
I've still got to pour over the code for the date problem with the new look, but I've got less time to do it now since I've found a new job! Only 3.5 weeks fully unemployed, with one of those being Isaiah's surgery week. I'm actually working today already at a nice small architecture firm 5 miles from home. Isaiah's been super crabby lately and we're trying to figure out why. He's gotten used to the casts again, and his separation anxiety, while still there sometimes, has diminished some. I'm wondering if his teeth are bothering him since he has yet to cut one. Its hard to tell if he's running a bit high temp from having the casts on right now, or from teething. Soon enough though we'll get it figured out since the legs come off monday next week and the arms are off on thursday. I can't wait to see his little fingers and toes. Got to get back to work
Today has been one of those roller coaster days. First you're up, then you're down, there's a few twists, a couple loops for good measure, and then you're right back where you started and asking yourself 'was that it?' Well I hope so for now. We had some fun insurance things today regarding Isaiah's surgery scheduled for Tuesday next week. Apparently somehow Coventry thought we were doing it here in Atlanta which is not the case. This after yesterday we were alarmed to find out that Medical City in Dallas was going to be out of network for us. After many frantic phone calls, a bit of anxious wait and see, and a couple bouts of crying (some sad, some happy) we are fairly confident that almost all the providers will be covered as in network for his surgery come tuesday. Our last hurdle is getting the okay from Dr Leonard tomorrow that he's healthy enough for surgery. So yeah, there were times today I thought I was going to have a heart attack. This...
So here's the news I sort of teased about a couple posts ago. We've got a new car! Yes, not that truly exciting, but hopefully as soon as we sell it you won't have to hear the worries and woes of the Toyota. It's a hard car to part with since it's been Rachel's car since she graduated college and was the first car that was really her's, but we needed a bigger car for our trips to Dallas and Orlando and it doesn't hurt to be ready should a little brother or sister come along someday down the road. We still have the Corolla, so if you know of anyone in the Atlanta metro looking for relatively cheap transport let us know! The new car is actually a ' new to us' car. We got a great deal on a 2008 Hyundai Santa Fe with under 15,000 miles and three years / 45,000 miles left on the warranty which give us a little peace of mind on car repairs. We were pretty amazed at what we were able to get for the money considering we've been looking on and o...
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