This is a somewhat infrequent look at our journey of raising a child with Apert Syndrome. We'll be including updates on Isaiah's surgeries, and growth progression, and whatever else we feel the world should know!
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BK
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Yes that is Rachel under there, but apparently she's a peaceful bounty hunter lurking in the shop after the Star Tours ride at Hollywood Studios
I've still got to pour over the code for the date problem with the new look, but I've got less time to do it now since I've found a new job! Only 3.5 weeks fully unemployed, with one of those being Isaiah's surgery week. I'm actually working today already at a nice small architecture firm 5 miles from home. Isaiah's been super crabby lately and we're trying to figure out why. He's gotten used to the casts again, and his separation anxiety, while still there sometimes, has diminished some. I'm wondering if his teeth are bothering him since he has yet to cut one. Its hard to tell if he's running a bit high temp from having the casts on right now, or from teething. Soon enough though we'll get it figured out since the legs come off monday next week and the arms are off on thursday. I can't wait to see his little fingers and toes. Got to get back to work
Today has been one of those roller coaster days. First you're up, then you're down, there's a few twists, a couple loops for good measure, and then you're right back where you started and asking yourself 'was that it?' Well I hope so for now. We had some fun insurance things today regarding Isaiah's surgery scheduled for Tuesday next week. Apparently somehow Coventry thought we were doing it here in Atlanta which is not the case. This after yesterday we were alarmed to find out that Medical City in Dallas was going to be out of network for us. After many frantic phone calls, a bit of anxious wait and see, and a couple bouts of crying (some sad, some happy) we are fairly confident that almost all the providers will be covered as in network for his surgery come tuesday. Our last hurdle is getting the okay from Dr Leonard tomorrow that he's healthy enough for surgery. So yeah, there were times today I thought I was going to have a heart attack. This...
This blog will be our way of keeping a record of our little Isaiah's growth, surgeries, and general updates over the next few months to years. We hope this will help you all feel connected, from everyone here in Atlanta to our family and friends spread across the country in Wisconsin, Minnesota, Indiana, Ohio and elsewhere. As many of you may already know, Rachel gave birth to Isaiah Jonathan Kolis at 10:07 pm on July 17, 2008. He weighed in at a whopping 8lbs 14.8 oz and 21 inches long and that was at only 36 weeks! Rachel was brought into the hospital last Monday for high blood pressure and two days later they began inducing labor due to pre-eclampsia. Nothing happened Wednesday, but we tried again on Thursday for a natural birth since her BP was normalizing and Izzy was doing fine. Why have major surgery when you can hopefully avoid it, right? Rachel began pushing at around 7.15pm but was having problems. After about an hr or so of pushing the doctor got the vacuum and ...
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