Big D 10/30/09
We got the word earlier today from Dr Fearon's office that we are pretty much a go for surgery so we are going to make the trip out to Dallas. Isaiah is not a 100% yet, but he's trending upwards and hopefully should be fine by monday when we get the official go ahead after all the preop stuff. If I had to guess I'd say we're 97% certain the surgery will go as planned.
Rachel and I are already pretty worn down even before we started packing. Rachel was sick last week into the early week, and I'm getting a stress cold, and with Isaiah being sick we've been doing nebulizer treatments 7 times a day (xopenex every 4 hrs, and a double dose of pulmicort in the evening between xopenex doses) which doesn't allow much time for sleep. We're also sticklers for trying to get as much of the billing stuff figured out ahead of time with all of the doctors so we don't have a surprise in 3 months when the EOB comes from insurance saying they're not covering something which has Rachel on the phone all the time instead of catching up on her z's. We've got most of the doctors lined up with letters of agreement with insurance about what they will get paid. The hospital is in process again, but at least this time we won't be surprised with the infamous "how will you be paying the $10,000 out of network deductible today?" question we got a checkin for his last finger release. Out of the 7 or 8 doctors that'll be used the only ones not locked in yet are anesthesia and the PICU doctors which are rare to get figured out ahead of time anyways. We're feeling pretty good, but we know this one will be the biggest expense to date for us surgery wise.
Luckily we get an extra hour of sleep on Sunday morning with the time shift, and hoepfully we get to relax a bit on the drives with visits with other Apert families in Birmingham and Shreveport.
Rachel and I are already pretty worn down even before we started packing. Rachel was sick last week into the early week, and I'm getting a stress cold, and with Isaiah being sick we've been doing nebulizer treatments 7 times a day (xopenex every 4 hrs, and a double dose of pulmicort in the evening between xopenex doses) which doesn't allow much time for sleep. We're also sticklers for trying to get as much of the billing stuff figured out ahead of time with all of the doctors so we don't have a surprise in 3 months when the EOB comes from insurance saying they're not covering something which has Rachel on the phone all the time instead of catching up on her z's. We've got most of the doctors lined up with letters of agreement with insurance about what they will get paid. The hospital is in process again, but at least this time we won't be surprised with the infamous "how will you be paying the $10,000 out of network deductible today?" question we got a checkin for his last finger release. Out of the 7 or 8 doctors that'll be used the only ones not locked in yet are anesthesia and the PICU doctors which are rare to get figured out ahead of time anyways. We're feeling pretty good, but we know this one will be the biggest expense to date for us surgery wise.
Luckily we get an extra hour of sleep on Sunday morning with the time shift, and hoepfully we get to relax a bit on the drives with visits with other Apert families in Birmingham and Shreveport.
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