This is a somewhat infrequent look at our journey of raising a child with Apert Syndrome. We'll be including updates on Isaiah's surgeries, and growth progression, and whatever else we feel the world should know!
We're in the PICU with him now. He's not waking up much and we need to make sure he does more soon. He's got nasal trumpets, a feeding tube, suction tubes in his mouth and all sorts of other goodness going on right now in addition to the RED device (the big purple thing on his face) I'm going to try to put all the pics behind the jump, so skip over if you're a little squeamish. If you want to see pics click 'read more'
We've got so much to be Thankful for this year! especially all of the help and well wishes we've received from all of you. We've got a healthy baby boy, with a couple of major issues, but all things that can be dealt with in time. We're so happy and lucky to have him. We're finding out fast that there are some great people down here that have offered their ears, their arms, and their wallets to us. We've got great support almost nationwide too! So as a quick little sign of thanks we've got this little video for you all to see the little guy in action.
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love in Christ,
Mat and Malia Lehnertz