Despite the extra time I have outside of work, it really hasn't amounted to much relaxation. It has been great getting to spend more time with Isaiah as he's growing so fast! Tomorrow its 3 weeks until he is one year old! This year has somehow simultaneously dragged and flown by. It's hard to imagine him being in the NICU, being tube fed and on oxygen. It all seems so long ago, but then again we've been through 2 surgeries since then, 4 or 5 different trips to the ER, a trip to Orlando, 2 to Dallas to see Dr Fearon and countless other Doctor's visits here. The dragging seems to be all of the waiting we've done in Doctor's offices and the like, but everything else has flown by.
His birthday falls on the first day of the Apert meet-up in Myrtle Beach, SC and we had originally planned to go up there for the weekend but because of the job situation, we just can't spend the money right now. We've been really lucky to this point to have met so many different people, both young and forever young, with Apert Syndrome, and I'm sure we'll get more out of it if we go next year. He'll just be that much more stable (and probably that much more hyper by then too since he'll be mobile we hope!)
In family news, my Dad is coming down from Racine, WI tomorrow for the weekend to see Isaiah before his B-day. I haven't seen him since New Years when he was last here. We're going to head out to the Thrasher's draft party tomorrow night since its one of the last bits of hockey related anything until September training camps, but it should be fun.
His birthday falls on the first day of the Apert meet-up in Myrtle Beach, SC and we had originally planned to go up there for the weekend but because of the job situation, we just can't spend the money right now. We've been really lucky to this point to have met so many different people, both young and forever young, with Apert Syndrome, and I'm sure we'll get more out of it if we go next year. He'll just be that much more stable (and probably that much more hyper by then too since he'll be mobile we hope!)
In family news, my Dad is coming down from Racine, WI tomorrow for the weekend to see Isaiah before his B-day. I haven't seen him since New Years when he was last here. We're going to head out to the Thrasher's draft party tomorrow night since its one of the last bits of hockey related anything until September training camps, but it should be fun.
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