Dallas Day 1

Captain’s Log, Stardate 042009

Okay enough with the Star Trek Next Generation references. I’m a little goofy this morning, probably due to the lack of sleep. I’m writing this post intermittently today in log format but posting it later in the day so sorry if everything is a bit confusing.

4am Wake Up! Time to give Isaiah his last nebulizer treatment before the hospital and wake him up enough to get a little pedialyte into him before the 4:30am cutoff of no food.

6am Bldg D – Medical City, sign in and the start of all the paperwork on the 2nd floor. We head up to the 6th floor for his vitals and more paperwork. (29” / 19lb 2oz and a healthy SPO2 range of 97-100%

7am Down to the 1st floor for his MRI of his head to help Dr. Fearon plan when we’ll need another cranial vault. I wonder what floor we’ll be on next?

8am MRI is done and we go back up to the 6th floor to ‘recover’ a bit. Isaiah’s crabby the whole way up to our temporary room until he gets some pedialyte and Apple juice. We get our vitals checked again and we’re officially discharged. Since we’re on the floor we decide to see another family on the listserv, the Sanborns from Vermont. Their daughter Olivia has Pfeiffers a somewhat similar craniofacial condition. Olivia just had her midface surgery and is in a RED (halo like device). We’ll be doing the same thing in a few years.

We now had a little break and went back to the hotel to get Grandma Hanthorn before we headed back to the hospital at 10am for before pictures, more paperwork, and some preoperation information.

We’re at lunch right now and head back to Medical city at 2:30 to see the ENT and Dr Fearon, and then we’re done for the day!