CT scan results / First Surgery

So yesterday afternoon was a fun day at Children's Hospital and the Neurosurgeon's. We first had the CT scan which Isaiah went through just fine. For some reason he decided to be a good boy most of the time at the doctors and didn't throw any huge fits, which was great. he let us know he was hungry around 2:30 but that was about it.

After the CT we went to Dr Hudgin's office so he could read them and help determine the schedule of his surgeries. He found that both Coronal sutures were fused as well as the Sagittal (the Coronals arch over the top of the head from ear to ear, the sagittal runs from the coronals front to back) The back of his skull was very thin, most likely because of all the pressure inside his little head. So the verdict is we're going ahead with surgery in the next 2-3 weeks which could be when my Dad, sister and her husband are in town right after Labor Day.

They would normally like to have him be about 3 months, but its better to do it sooner so that his brain will properly grow and we don't lose as many IQ points.

The surgery sounds kind of crazy when they described it to us. Basically they are going to slice his skin around the coronal sutures and sort of peel it down to work on the skull. It sounds gross, but they only do one incision that will eventually be hidden by his hair. They will then cut out portions of the skull to open the coronal sutures and the sagittal bone completely. Additionally they will move his little forehead forward a bit over the eyes. Essentially all of this is just to give his little brain more room to grow and these will all fuse back up sooner than normal and we'll have to go through this whole process again in around a year.

The surgery itself will only take about 3 hours or so, but he'll be in a Pediatric ICU for a couple of days and then moved to the neurosurgery post op floor in Children's for maybe 5 days. We don't know if he'll have to wear a helmet for a little while or what, but I was kind of thinking they're essentially just opening up what would normally be open on a baby his age, so maybe not.

We'll find out more on Friday when we meet with the cranio-facial surgeon.

Comments

Anonymous said…
That's great news that he can have surgery so early! We're praying for you all :)

love in Christ,

Mat and Malia Lehnertz
Anonymous said…
I am pleased to hear the surgery will solve some of the space issues so early. I am praying for you and my heart is with you as you go through this. Thank you for the updates!

XOXO
Marpessa

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